A New Idea

When our son Luke was diagnosed with Craniosynostosis 6 months ago I immediately started scanning the internet for others who had dealt with or were dealing with the same diagnosis. I came up empty handed. And to make matters worse, most image searches for Cranio turned up photos of untreated cases, which were incredibly scary for me at the time.

Luke on surgery day.

Since our diagnosis I've been contacted several times by others who have family and friends facing Cranio treatment for their babies. I'm hoping that by starting this blog I can help create a place for us to share our stories and photos and general encouragement for each other, no matter the specific diagnosis or treatment path.